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National Cancer Institute
U.S. National Institutes of Health www.cancer.gov
The caBIG program has been retired, and while this website is being maintained temporarily to prevent broken links and provide access to information on the subset of caBIG projects that were transitioned into the new NCIP program, it will be archived in the near future. For information on the NCI's biomedical informatics program, please visit http://ncip.nci.nih.gov.

The information and links on this website are no longer being updated and are provided for reference purposes only.

 

Large Online Cohort Studies

The National Cancer Institute (NCI) is applying its tools for connectivity and collaboration (such as caBIG® technology and Web 2.0), to enable a new generation of consumer-controlled, online research studies. In such studies, tens of thousands or even millions of consumers and patients can volunteer to share their health information in order to fuel research into the causes and treatments for cancer.

In one recent example of such an approach, the NCI has partnered with the Dr. Susan Love Research Foundation and the City of Hope to develop the first ever online cohort of one million women designed to examine the causes, treatment, and prevention of breast cancer. In that study, women—with or without breast cancer—sign up and respond to a series of periodic secure online questionnaires concerning topics such as their health, family health history, nutrition, physical activity, etc. These women are then connected to the research community via the Web.

Other organizations can undertake similar Web-based research studies by adopting this technology to mobilize large numbers of consumers and patients.

Learn more about the Health of Women Study.

Learn about the Consumer Web Portal – My Cancer eLIFE model.

"We would not be able to do this project without the collaboration of caBIG®."
(Susan Love, M.D., Dr. Susan Love Research Foundation)

Does your organization want to participate?

To discuss a project with the National Cancer Institute, call us at 301-496-3458 or contact catalyst@bighealthconsortium.org

The information and links on this website are no longer being updated and are provided for reference purposes only.